tag:blogger.com,1999:blog-3651496850952600622.post2177869208351999852..comments2024-01-06T00:43:38.263-07:00Comments on Richard Is Living With ALS: Richard Is Living With ALS - The MovieAnonymoushttp://www.blogger.com/profile/13569763685182951696noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3651496850952600622.post-37483534494629745682016-07-30T02:06:45.710-06:002016-07-30T02:06:45.710-06:00Thanks for reply. There is absolutely no support t...Thanks for reply. There is absolutely no support to speak of here in my city. It is a major city. The doctors are renowned. Yet, the nurse is such a bully she has been removed from associating with me. <br /><br />The physical therapist keeps showing me how to carry a smaller purse. Or, they show me the same exercises. I had to ask for a prescription for physical therapy for help with the legs and hands and breathing, but no one offers any info on home aids. <br /><br />The nurse neglected to tell the doctor I fell and hit my head on concrete. I can't use the bus because I can't get up the lower step, and the doctor said, why didn't you wait for the next bus? That's not logical.<br /><br />The ALS association in the city is a terrible monster. They won't give you any clues unless you sign a contract saying they can communicate with your doctors. I don't see why they can't give you information on how to get a home health care aid, how to deal with insurance, or allow you to talk to a social worker about what to do when you cannot afford bananas. <br /><br />I suggested to the director of the chapter, why don't you offer a cheat sheet for people who need to find out how to dispense soap or how to be careful plugging in things. <br /><br />Everybody is too embarrassed to talk about the people who have nothing. They expect families to pick up the slack or to call churches or other agencies. Catholic Charities and Salvation Army say they have no more funding or no funding for compression socks or any of the things that would help in the house. <br /><br />The churches all say they have no funding, either. When a pastor came to the phone he said, "Come to the church and I will wash your hands for you" and hung up.<br /><br />I wanted to give another perspective because I seem to be the only one who doesn't get to say, oh I'd like to do this or that because I can't even go out and buy a new sippy cup, because it would cost two dollars.<br />Anonymoushttps://www.blogger.com/profile/06718310733241160126noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-6855936891321485112016-07-29T00:13:14.264-06:002016-07-29T00:13:14.264-06:00I understand your fear completely. What can we do ...I understand your fear completely. What can we do to help? Do you have e-banking? Can we send you some money?Anonymoushttps://www.blogger.com/profile/13569763685182951696noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-7246871401418406392016-07-28T01:07:59.469-06:002016-07-28T01:07:59.469-06:00I don't know what to say, Richard. I am withou...I don't know what to say, Richard. I am without groceries until food stamps kick in August 7. $190 a month. Disability is 1100. No family to help out. Yes, scary.Anonymoushttps://www.blogger.com/profile/06718310733241160126noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-60361306080243940892016-07-28T01:07:12.532-06:002016-07-28T01:07:12.532-06:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/06718310733241160126noreply@blogger.com