tag:blogger.com,1999:blog-3651496850952600622.post654722132847910289..comments2024-01-06T00:43:38.263-07:00Comments on Richard Is Living With ALS: FocusAnonymoushttp://www.blogger.com/profile/13569763685182951696noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3651496850952600622.post-35070246925601780892013-12-04T14:44:14.402-07:002013-12-04T14:44:14.402-07:00Cary, you've covered a lot of ground in a shor...Cary, you've covered a lot of ground in a short time. I saw the CP reference in your blog. It must be a real challenge for you some days. And you are right; those kinds of platitudes are thorough in their annoyingness, and in their laziness. People use platitudes so they don't have to actually think about what to say.Anonymoushttps://www.blogger.com/profile/13569763685182951696noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-55348474445513238442013-12-04T14:40:04.305-07:002013-12-04T14:40:04.305-07:00Hi Richard - it's Cary again...from Moncton, N...Hi Richard - it's Cary again...from Moncton, NB. I commented last night although in terms of your blog, it was months ago. I am officially hooked and just can't stop reading.<br /><br />I understand your comments and frustration here. My son (aged 6) has Cerebral Palsy and people say all sorts of odd things that drive me to insanity. Things exactly like you say above like "but you should focus on all that he CAN do"...and yes, most days that IS what I do...and other days...when he can't join other kids in his age, it's hard to stay positive.<br /><br />And I like your last comment...I also ask that people not resort to platitudes...to me, I think the comment that I hate the most is "God gives special children to special parents". What utter nonsense.Caryhttps://www.blogger.com/profile/09106769763459813759noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-88706893564508926472013-09-13T13:07:41.207-06:002013-09-13T13:07:41.207-06:00Plenty of hugs from mom my dear. Over and over.
lo...Plenty of hugs from mom my dear. Over and over.<br />love<br />Momnanboudreauhttps://www.blogger.com/profile/04906135439794551262noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-33571318613896399292013-09-13T10:55:07.126-06:002013-09-13T10:55:07.126-06:00Of course I expect a reaction! I am, after all, st...Of course I expect a reaction! I am, after all, still me regardless of this disease. :)<br /><br />You're comment is actually more direct and correct than I could have asked for. You're right, rather than bitch about what people do wrong, it would be more useful to say what they can do right. Unfortunately some days that is a moving target, along with my emotional state. However I am an emotional radio station, always broadcasting, so it's usually pretty easy to figure out where I am at.<br /><br />At a minimum, I would ask that people not resort to platitudes. The misery of another does not lighten mine. Don't tell me how I should be feeling or how I should respond; mine is mine. I ask that pity be avoided. Sympathy is good but not too much. Hugs are always welcome. Most of all, I just want to be treated as normally as possible with a bit of allowance for my limitations and condition, plus helping me with things on the top shelf of life.Anonymoushttps://www.blogger.com/profile/13569763685182951696noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-46124857676499950862013-09-13T10:40:14.672-06:002013-09-13T10:40:14.672-06:00For your defence and the help of others who will f...For your defence and the help of others who will follow with disease and disability, teach us how we should deal with it. You’ve told us to ask you how you’re feeling, not how you’re doing. But, and especially, when you’re down, and angry, and clearly upset, how do you want folks to respond?You’re blogging in public, so you must expect a reaction (and you being you, of course you do!) :)Fred Nurkehttps://www.blogger.com/profile/08860836632945085610noreply@blogger.com