tag:blogger.com,1999:blog-3651496850952600622.post8654598795351421838..comments2024-01-06T00:43:38.263-07:00Comments on Richard Is Living With ALS: It's A Great PartyAnonymoushttp://www.blogger.com/profile/13569763685182951696noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3651496850952600622.post-81149258889852926282014-02-02T16:50:45.558-07:002014-02-02T16:50:45.558-07:00I read all your blogs with interest, however, this...I read all your blogs with interest, however, this one really hit home. Ive decided on a program in B.C. called "My Voice", advance care planning guide for my future and these things are not easy! <br />Al and I discussed this when I had Lymphoma and we both decided on no heroic means. Nowe I am well, and he is gone. We talked, but didnt write anything down, and because it was so sudden all went out the window in an effort to keep him alive. When I think about what we put him through to keep him alive, now makes me want to vomit. The surguries may have saved him and many people have had heart attacks and lived to reach a ripe old age. It was the heart shocks, the paddles that keep me awake at night. Al had degenerative disc disease and the discs were crumbling one after another. When I think now of what those shocks could have done to his back, and once he was gone for nearly 5 minutes, what kind of life(?) would he have come back too? We will never know. Obviously , his heart was irreparably damaged ,but I just couldnt let him go. Actually, no one bothered to ask if he had a care plan in place.When I finish mine,I will have it on a card in my wallet,all my children will know,all my sisters will know,and if it is not followed, I swear I will come back to haunt them for the rest of their lives.<br />Just because it is written out, do doctors follow the wishes in Canada? I used to be so anti-euthanasia when it was Sue Rodriguis , but now Ive seen what Ive seen, and got older myself, I see so many more "grey areas" then I did when I was young. I sometimes think,"Would Al have wanted to come back to this world of pain and agony that he lived. He had been on Morphine for 23 years! Would it have done him any favors to bring him back to this life, or was I just being selfish? This keeps me awake so many nights.Sorry, again, Richard, but nobody I know will talk about these things with me.Anonymoushttps://www.blogger.com/profile/12690494287895070957noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-35400971773601454562014-02-02T15:49:55.530-07:002014-02-02T15:49:55.530-07:00Thanks, Adam.Thanks, Adam.Anonymoushttps://www.blogger.com/profile/13569763685182951696noreply@blogger.comtag:blogger.com,1999:blog-3651496850952600622.post-90207287743594931462014-02-02T14:48:50.160-07:002014-02-02T14:48:50.160-07:00Well done, well written. You brought it home very ...Well done, well written. You brought it home very nicely.Anonymoushttps://www.blogger.com/profile/14287013477612642987noreply@blogger.com