Wednesday 3 January 2018

I'm Not Up To It Anymore

I don't feel like writing today. In fact for a number of days I have felt that way, but forced myself to write, about something, anything. I have reached a point where writing this blog is doing less and less for me as each day passes. It is no longer cathartic. Most of my topics are becoming repetitive. And we all know how this disease is going to play out. It's just a matter of when, not if.

I was thinking I might stop the daily posts, at least for a while, to see what happens. Once the pressure is off, will I begin to enjoy it once again? Perhaps I could just write weekly, or when the mode strikes me. I'm not sure. I just don't feel up to it anymore.

13 comments:

  1. If writing less or completely. Please know you will be missed ...someplace back in my mind, I knew this would happen at some point.

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  2. Follow your heart, my friend. Only you know what is best for you.

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  3. I think it would be a shame if you did that. Your point of view is very unique and your determination is inspiring.

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  4. Hi Richard, I fully understand where you are coming from. I don't know if this helps you, but I have been rooting for you since I discovered your blog a few years ago. You are my inspiration,you keep me going when I am missing my sister who died from als. You are a source of comfort to me. I wish I had a cure for you. I respect whatever decision you arrive at and hope whoever reads your blog learns as much as I have from you. You are a treasure!

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  5. I am sad to read this, amongst all the other sadness. I think your daily blog is the only one of its kind, giving us a real first person glimpse of this horrible disease. However, I understand.

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  6. We've never met but my father had ALS and I searched out blogs about ALS. I love reading what you have to say but I understand. Maybe you could show a friend how to post and they could write something when you don't feel up to it.

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  7. I agree with the others saying that your perspective is so unique, even if you're just saying "I don't feel up to writing today." I have learned so much about the physical and emotional ramifications of terminal illness, ALS, dealing with caregivers and aides, etc. I am not trying to convince you one way or the other, but just letting you know that you have readers (strangers) who do miss when you don't post and who care about how you're doing from day to day.

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  9. Follow your heart, Richard. We will miss your blog though ...

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  10. Richard, I consider your testimony as absolutely unique and invaluable as regards ALS blogs.
    It's a profound read, it's moving read, and I am amongst the many readers that feel inspired by your daily posts.
    I would miss your blog, had you to put it to sleep, I really would.

    But, the last word is yours of course, and I would not encourage you to continue writing if you're feeling it bares no sense for you anymore.

    As ALS goes, I don't want to cast false hopes under the lights, but it seems the israelis are up to something. Have you checked the latest press releases about that?

    Sending you good vibes.

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  11. I am sure that I am one of many who will miss your daily postings. However, you must do what you feel suits you.

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  12. I am sure that I am one of many who will miss your daily postings. However, you must do whatever suits you. Thanks for sharing your unique perspective with us.

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  13. Hi Richard, I started reading your post a couple months ago, I found your blog when I was searching for info, tips etc on ALS, my sister was diagnosed Nov 2016. I wanted to let you know I really like your blog, it is a part of my daily read every evening. I have never found your writings repetitive, they are authentic and real. I wish you all the best Richard, I am hoping a cure/treatment, is just around the corner. I look forward to your next posting.

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