Friday 10 November 2017

How It Is

I continue to struggle with illness, last night and this morning especially. I have virtually lost all control over my bowels, living at the mercy of chance and diapers. I am wearing a catheter full time as the new aductors on my wheelchair, the things meant to keep my legs from flopping out to the side, are too effective. I can't spread my legs wide enough to pee into my jug. The nausea is almost constant. The dizziness continues.

I need to see a doctor the inner ear damage from the gentomycin, most likely with a referral to an ENT specialist of some sort.. I'm waiting to hear from the ER doctor about what antibiotic they want to put me on to help with the damage done by previous antibiotics. In the meantime I continue to deal with an explosive back end and poor targeting when urinating.

This will likely not kill me. But right now, I'm wishing. Now, in addition to having a terminal illness, I am really sick. I'll keep going until I have to stop. That's just how it is.

3 comments:

  1. Would this back end deal be better handled in the... hospital? You'd have round the clock access to care. Also, IV treatment for cdiff is sometimes necessary. Hope you kick this soon! Rooting for you 👍

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  2. i have had c diff and it was awful and i didn't have a terminal illness i can't imagine what you are going through. my thoughts and prayers are with you to get over this soon.

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