I spent most of my day today sleeping. Certainly there was the morning routine, where Kathy got my up at 11:00 AM for ablutions, a shower, and dressing. Then, of course, there were exercises, something which always leaves me worn out. I ate my sandwiches, my regular Monday treat. Then, as Kathy left, I parked myself in front of my window, drifting off almost immediately.
When the wheelchair repairman came, I slept through most of that, actually engaging in sleep based conversation, invoking him in parts of my dreams. Once he left, at about 2:30 PM, I settlted into deep slumber until 4:30 PM, when Kabari came to check my catheter bag and to ensure I had taken my pills. After she left, I slept a bit more, finally becoming active, yet still tired, at about 5:00 PM.
For the last hour and a half, I have been putting together a proposal to AISH, the Albertat Assured Income for the Severly Handicapped, to purchase an adjustable bed for me. This would be a queen sized adjustable bed, as opposed to a standard sized hospital bed. I've spend a lot of time in the standard hospital beds. They are built for standard sized people, with an average height of 5' 10" and an average width of skinny. I am neither.
The biggest problem for me in the standard hospital bed is that I cannot roll over. I have to be yanked to one side of the bed, then tilted into a rolled over position. This requires third party assistance. It also means I have to wake up completely, call for help, wait until they get there, then try and get back to sleep. Even with a live-in, this is an unsettling process. Better that I have the right bed.
In some ways doing the proposal was fun. I got to used some of my business skills, including price researching, gathering proposals from vendors, and putting together the written proposal. I enjoyed doing it. Now all I have to hope for is that AISH will approve it, and I will get a bed that will sit me up. Otherwise I will have to go with a hospital bed, most likely on loan from the ALS Society. Then it will be a constant battle against pressure sores, because I can't turn over in those beds.
Hope you get the bed! You certainly need it. You deserve to be as comfortable as possible. Your mind is still sharp and I'm sure your proposal was well stated. 👍
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