- Don't feel like cooking. Don't feel like eating. Had a VERY LARGE bowl of Alpha-bits and Frosted Flakes for breakfast, at noon.
- I'm fat, very fat. All the statistics, all the doctors, all the ALS workers tell me this is a good thing. I hate it. I am disgusted with the immense belly I see in the mirror. I am so sad at what this disease has done to my body.
- My HCA's are re-learning how to water the plants on my deck. Some of the plants, especially the Alyssum, do not seem to have done well in the transfer. It also looks like a dandelion snuck into one of the plant pots. I am hoping time and water fixes the plants not doing so well. If not, remediation may be in order.
- These short bursts are turning into paragraphs. Not the intent.
- My left shoulder and arm are almost useless now. Move it once or twice and it gives up, drops to my side and won't lift up.
- I'm tired today. Napped all day so far.
- I broke the headrest on my PWC last night. Allen from ALS Society fixed it today but found out my seatback is badly bent on one side. More work needed.
- I had a dream last night. It was a fun dream. That is all.
My name is Richard McBride and I have ALS. I was diagnosed in November 2012 at 57 years of age. This blog will cover my journey. Just remember, I am living with ALS, not dying from it. **Richard passed away 9/26/18 naturally, and NOT from ALS - he beat that sucker!!**
Wednesday, 23 May 2018
Short Notes
Today, a potpourri of short notes...
Subscribe to:
Post Comments (Atom)
youre fun. and dont forget it. i have been body shaming myself , as a women, my entire life. i come from a large family of large sized people. its an outer shell. what matters... is that you are sexy inside. fun inside. loving inside.... helps me to remember that i dont have a twiggy body and never will. i try to embrace the love inside. i am fat. and well sometimes my clothes fit and some times my clothes dont. but i dont want to bitter. and i caulk it up to the next phase in my acceptances
ReplyDelete